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Sickle Cell and Thalassemia Service (Children and Young People) – Bexley and Greenwich
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Our Children and Young People Community Sickle Cell and Thalassemia Service provides specialist nurse-led out of hospital care to 0-17 year olds diagnosed with Sickle Cell Disease or Thalassemia who are registered with a Greenwich or Bexley GP.
Our services include:
- Provision of advice and education/support for families and health care professionals
- Pain management support at home
- New-born diagnosis care, support and education
- Care planning – personal and educational
- Liaising with wider Multi-Disciplinary Team (MDT) professionals
- Specialist nurse reviews at clinics and during inpatient stays
- Home visits following A&E attendance or discharge from hospital to assess physical health
- Liaising with adult services to offer a seamless transition of patients into adult services.
- Peer and parental support group sessions
Our team
Our service is run by clinical nurse specialists.
We work in partnership with local hospital based haemoglobinopathy teams, GPs, NHS England National Sickle Cell Screening Programme and Sickle Cell Society.
How to access this service
To access our service you need to:
- Have a confirmed diagnosis of sickle cell or thalassemia
- Not sickle cell or thalassemia trait
- Be registered with a GP within the boroughs Bexley and Greenwich
- Must be under 18 years old
Referrals
Referrals can be made by GPs and any other health care professional by request our referral form at oxl-tr.SCT-nurses@nhs.net.
Self referral parents/carers and young people can self-refer by contacting our team on:
- 0203 004 0092 (option 1)
How to contact this service
Community Children and Young People’s Sickle Cell and Thalassemia Service,
Acorns, Queen Mary’s Hospital,
Frognal Avenue,
Sidcup,
Kent,
DA14 6LT
Tel: 0203 004 0092 (opt 1)
Email: oxl-tr.sct-nurses@nhs.net
Useful information
You can find a range of information and support for Sickle Cell and Thalassemia:
- The NHS South East London Integrated Care System has resources to other useful organisations, and support groups, including those outside of London.
- The Sickle Cell Society is the only national charity in the UK that supports and represents people affected by a sickle cell disorder to improve their overall quality of life
- Newborn blood spot screening is offered to parents to test their baby for one of nine rare but serious health conditions. Early diagnosis and treatment can improve the health of affected individuals, as well as prevent complications including severe disability and death.
